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International Porphyria Patient Network International Porphyria Patient Network
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  • About us
  • Blog
  • Links and files
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English

The EMA recommends givosiran for AHP!

03/02/2020
Editorial Team 2020-02-03T13:23:20+01:00
English

The Patient Perspective: A Matter of Minutes

30/11/2019
Editorial Team 2019-11-30T00:38:45+01:00
English

The FDA approves givosiran for AHP!

20/11/2019
Editorial Team 2019-11-20T19:32:56+01:00
English

MT-7117 ENDEAVOR Study for EPP

11/11/2019
Editorial Team 2019-11-11T20:44:40+01:00
English

The FDA approves afamelanotide for EPP!

08/10/2019
Editorial Team 2019-10-08T23:07:02+01:00
English

Access to Medicines and Medical Devices All-Party Parliamentary Group (APPG) report on NICE methods

18/09/2019
Editorial Team 2019-09-18T20:51:05+01:00
English

Three hours of sun: New studies on EPP treatment under real world conditions!

17/09/2019
Editorial Team 2019-09-17T21:32:02+01:00
English

Patient Empowerment, Medicine Access @ Point of Care, Jasmin Barman-Aksözen

02/09/2019
Editorial Team 2019-09-02T21:27:40+01:00

International Porphyria Patient Network

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