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International Porphyria Patient Network International Porphyria Patient Network
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English

Pandemic isolation and EPP – A commentary

05/05/2020
Editorial Team 2020-05-05T13:53:28+02:00
English

Important step towards a new causative treatment option for EPP

03/05/2020
Editorial Team 2020-05-03T16:40:39+02:00
English

EPP patients spend an additional 6 hours per week outdoors when treated with afamelanotide

03/05/2020
Editorial Team 2020-05-03T16:36:15+02:00
English

Overexposed – Documentary about EPP

12/04/2020
Editorial Team 2020-04-12T16:27:04+02:00
English

The EMA recommends givosiran for AHP!

03/02/2020
Editorial Team 2020-02-03T13:23:20+02:00
English

The Patient Perspective: A Matter of Minutes

30/11/2019
Editorial Team 2019-11-30T00:38:45+02:00
English

The FDA approves givosiran for AHP!

20/11/2019
Editorial Team 2019-11-20T19:32:56+02:00
English

MT-7117 ENDEAVOR Study for EPP

11/11/2019
Editorial Team 2019-11-11T20:44:40+02:00
English

The FDA approves afamelanotide for EPP!

08/10/2019
Editorial Team 2019-10-08T23:07:02+02:00
English

Access to Medicines and Medical Devices All-Party Parliamentary Group (APPG) report on NICE methods

18/09/2019
Editorial Team 2019-09-18T20:51:05+02:00

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