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The Patient Perspective: A Matter of Minutes

The Patient, the scientific journal dedicated to patient-centered outcomes research, has published a commentary authored…

30/11/2019
Editorial Team 2019-11-30T00:38:45+01:00
English

The FDA approves givosiran for AHP!

These are exciting times for the porphyria patient community: After the recent FDA approval of…

20/11/2019
Editorial Team 2019-11-20T19:32:56+01:00
English

MT-7117 ENDEAVOR Study for EPP

Today, in a press release Mitsubishi Tanabe Pharma Corporation announced results of the MT-7117 ENDEAVOR…

11/11/2019
Editorial Team 2019-11-11T20:44:40+01:00
English

The FDA approves afamelanotide for EPP!

The IPPN is delighted by today‘s FDA approval of afamelanotide, a significant milestone in a…

08/10/2019
Editorial Team 2019-10-08T23:07:02+02:00
English

Access to Medicines and Medical Devices All-Party Parliamentary Group (APPG) report on NICE methods

The UK Access to Medicines and Medical Devices All-Party Parliamentary Group (APPG) has published a…

18/09/2019
Editorial Team 2019-09-18T20:51:05+02:00
English

Three hours of sun: New studies on EPP treatment under real world conditions!

Only a few minutes in the sun are usually enough for EPP patients to develop…

17/09/2019
Editorial Team 2019-09-17T21:32:02+02:00
English

Patient Empowerment, Medicine Access @ Point of Care, Jasmin Barman-Aksözen

Patient representation during the evaluation of medicines by key decision makers such as regulatory agencies,…

02/09/2019
Editorial Team 2019-09-02T21:27:40+02:00

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